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Thanks for visiting Rare Voices Australia’s Fair for Rare website
Rare Voices Australia’s (RVA) Fair for Rare campaign was launched in 2017 to enable people living with a rare disease to share their story and ask for a ‘fair go’. The campaign used people’s story to further reiterate the need for a comprehensive rare disease framework covering six strategic priorities: diagnosis, access to treatments, data collection, coordinated care, access to services and coordinated research.
Fair for Rare saw the rare disease community coming together to call on policy makers to take action and support the estimated two million Australians living with a rare disease. RVA thanks the rare disease community for supporting the campaign.
to read more about Australia’s Fair for Rare campaign.
Looking for New Zealand’s Fair for Rare campaign?
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©2018 Rare Voices Australia Ltd.