Dialog Box


Contact your MP

Tell your MP why YOU support Fair For Rare. Tell them about the impact of Rare Disease and how Australia needs a better system - a fairer system. The burden of rare disease is unacceptably high for patients, families and the community. Ask them to help make Rare Disease a national priority. 

Australians living with rare disease need:

  • More equitable and timely access to 
    • Diagnostics
    • Treatments
    • Services 
    • Coordinated Care 
  • A Nationally Co-ordinated and Collaborative Approach
  • Improved Data Collection – a National Registry of Rare Disease
  • Nationally Coordinated Research

Some Ideas include:

  • Send them a letter. Select your version of a sample letter – download in Microsoft Word format
  • Phone his/her office and make an appointment to hand deliver the letter. Every MP is obliged to meet with their constituents
  • Tell them about this Fair For Rare website
  • Ask them to show their support for Fair For Rare via the Hero Wall
  • Ask them to join the Parliamentary Friends of Rare Diseases.
  • Ask them to contact Rare Voices Australia 

To find your local MP, please click here.