There are many heroes in the Australian rare disease community – the doctors, researchers and patient advocates. Of course, the most amazing heroes are the individuals and their families who live with rare disease each and every day. They are your family, your friends, your neighbours. They are all ages and come from all backgrounds. They are You. They are resilient, brave, determined, hopeful and just get on with life, the best they can. They are reluctant heroes – they just want a ‘fair go’.
You too can be a Fair For Rare Hero. Download and print out a Speech Bubble, take a photo, and upload to our Hero Wall. Show your support for Fair For Rare.