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Download useful resources from the Fair for Rare campaign.
National Rare Disease Framework: 6 Strategic Priorities
National Rare Disease Plan Factsheet
Rare Disease Summit Draft Communique
We encourage you to download and share these infographics, which outline the 6 Strategic Priorities included in our National Rare Disease Framework:
2. Access to Treatments
3. Data Collection
4. Coordinated Care
5. Access to Services
6. Coordinated Research