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Resources

Download useful resources from the Fair for Rare campaign.

General Resources 

 National Rare Disease Framework: 6 Strategic Priorities 

National Rare Disease Plan Factsheet

Rare Disease Summit Draft Communique

We encourage you to download and share these infographics, which outline the 6 Strategic Priorities included in our National Rare Disease Framework:

1.  Diagnosis

2. Access to Treatments

3. Data Collection

4. Coordinated Care

5. Access to Services

6. Coordinated Research